I woke up today with intense cramps and some light fresh blood, i struggled to eat my breakfast but needed to eat to take my tablets.
I left early for my appointment with my Endo consultant and I was looking forward to getting some further advise.
I explained I was really struggling and to my surprise my MRI results were already back and he was able to discuss the findings with me.
In short the main findings were:
a 5cm endometrioma cyst on my left ovary. *
A small endometrioma cyst on my right ovary
Endometriosis adhering the back of Uterus to the bowel
This explains the amount of pain and discomfort i am having particularly on the left side and in relation to bowel movements and bleeding.
From what he could see on the scan it looked as though the endo had not got in to the bowel but they will investigate that in surgery.
He asked me my fertility intentions and I explained it was still something that was a goal but my health had to take priority.
We agreed that the removal of my left ovary, tube and the separation of my bowel and uterus were the main aims of the surgery.
He was convinced that this would make a dramatic difference to my discomfort.
I asked if the night sweats were a symptom of all this but he said no and agreed that the IVF drugs could well have sped up the process to menopause due to the forcing of the ovaries that already have a low reserve to produce them.
I asked him what the next step was after the pill had made me so ill and i was living in fear of my cycle and bowel.
He prescribed me Prostap which effectively puts the ovaries to sleep and although takes a few weeks to work will really help with my pain. It is an injection given monthly and he recommended i stayed on it a few months after surgery to aid recovery.
I am relieved but i am also aware this drug has side effects and may well effect my mood, thin my hair temporarily and cause headaches. Is risky but so many women i have spoken too swore by this as the break they needed!
So I have the Prostap and I take it with me and have my injection booked for Monday morning at my doctor surgery.
I have mixed feelings about today. In some ways i am relieved to finally have some answers and know that i am not imagining it all, but on the other it is on my mind that trying IVF again may not be an option. It is all reliant on my recovery and if my right ovary gets any worse.
All i know is right now I would just like a peaceful and pain free weekend!
*An endometrioma, endometrioid cyst, endometrial cyst, or chocolate cyst of ovary is a condition related to endometriosis. It is caused by endometriosis, and formed when a tiny patch of endometrial tissue bleeds, sloughs off, becomes transplanted, and grows and enlarges inside the ovaries. As the blood builds up over months and years, it turns brown. When it ruptures, the material spills over into the pelvis and onto the surface of the uterus, bladder, bowel, and the corresponding spaces between.